Hello, we are Natasha's friends and family...
On May 1st, 2015 Natasha Rose Gould was diagnosed with Diffuse Intrinsic Pontine Gliomas (DIPG) a highly aggressive and difficult to treat brain tumor found at the base of the brain, mostly in children.
There is no cure for DIPG. There have been no new treatment protocols in over 40 years. The median age of diagnosis is 6-7 years. The median life expectancy without treatment is 9 months. Radiation therapy is given to prolong life for some months.
DIPG is, overall, the leading cause of death of pediatric brain cancer. More kids die from brain cancers than any other pediatric cancer. Cancer is the #1 cause of disease death in children, the 2nd leading cause of death from all causes.
Childhood cancer is dramatically underfunded. Yes, fewer children get cancer compared to adults. But the loss of potential life years along with the high incidence of secondary cancer and other severe ailments caused by initial cancer treatments demand that more must be done. Pediatric cancer research by pharmaceutical companies is not a profitable business plan. Less than 4% of health research funds from government are aimed at pediatric cancer.
Natasha passed away on August 4th, 2016, 15 months after her diagnosis.
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